On the down side, we had to go to the dr. after the zoo. The x-ray they took yesterday was fine, but they are concerned about the continuing bouts of blood in the urine and the spot in his bladder that showed up on his ultrasound. So, they are scheduling another cystocopy on May 28th. (He just had one back in November.) They are also going to do a renal scan to look for any damage to the kidney and look for drainage problems. He will stay overnight at Cook's, so that his nephrologist can confer as well. The dr. said it is possible that he will have to have his ureter tube re-re-attached. This has already been done when he was a year old. So, needless to say, I'm worried. It's not fair. I will never understand why kids have to be sick. Sometimes I wonder if it was something I did that made him born that way, but I guess that is just my guilt at not being able to control or understand the situation. I just wish I could make it better for him. I hate that he is so familiar with ultrasounds that he jumps up on the bed, pulls his shirt up for the jelly, and asks what prize he gets when it's over. I hate that he knows he can't eat chips or drink too much milk cause he will pee blood. I hate that he has three wonderful doctors that he is so familiar with and their nurses that I am now on a first name basis with. I hate that he can pee perfectly in a cup and no 4 year old has any idea what he is talking about. I hate holding him down for blood work, catheters, and IV's. And most of all, I hate the unknown. I hate not knowing what is wrong with him and being able to fix it. I hate that my baby, though he looks healthy, is really sick.
But I love that wonderful, strong, beautiful little boy. And if I know anything for certain, I know he can get through this. I just wish he didn't have to.



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